Tag: Down syndrome
-
The Real Goal
•
Today, Sienna and I walked the halls of her outpatient therapy center again.It’s a place that holds nearly a decade of memories—milestones, breakthroughs, battles.It’s seen us warrior through the messiness of progress. So I don’t know why I was surprised when the emotions hit hard today.But they did. Because here’s…
-
Split Wide Open
•
After years of fighting for my daughter’s inclusion, I find myself split wide open—grieving school closures, Medicaid cuts, and a country that keeps choosing cruelty. This is a story about rage, resilience, and the song that made me pull over and finally feel it all.
-
When the Crowd Goes Quiet
•
At one point on this journey, I found myself deep in an advocacy effort alongside a younger mom—newer to the world of disability rights, but fierce, brilliant, and already exhausted by the weight of this fight. We were trying to create real change. The kind that disrupts power structures. The…