Book Blog
Welcome to This Life We Got
For the past nine years—ever since my daughter Sienna was born—I’ve been writing our story here.
What began as a blog has unfolded more like a book: chapters of family, advocacy, education, and inclusion, written with raw honesty and heart. This space is a peek behind the curtain of our lives, where vulnerability meets persistence, and where I hope you’ll find inspiration for whatever you need today. Readers often tell me it’s the honesty that keeps them coming back. I’m so glad you’re here. Use the search bar to dive into any topic that speaks to you—family, advocacy, education, or inclusion.
-
Why is your Mom such a Germaphobe?
If I had a mom/wife super power, it would have to be my laid backness. Is that a word? Anyway, I am not a huge planner. I live each day in the moment, and I have a tendency to let…
-
Transitions are Hard
I sit in my living room, which is now full of strangers, thinking that this has to be some nightmare that I will wake up from. I see Haley on the steps playing quietly by herself. Tears fill my eyes.…
-
Let’s Talk Genetics
Before I start this blog post, I want to make sure it doesn’t take too much of a political turn. Let me start by saying that I believe every woman has a right to choose what is best for her…
-
Can We Stop Placating Miscarriages?
“It’s for the best. There must have been something wrong with that baby.” “God only gives you what you can handle. You are strong. You will get through it.” “You can get pregnant again and the next baby will be…
-
The Diamonds in Her Eyes
“Mommy, why does Sienna have diamonds in her eyes?” Haley asks as she stares into her sister’s eyes while they embrace. I smile. “They do look like diamonds, Haley. They are called Brushfield spots. People who have Down syndrome can have…
-
We Have A Walker
108 Early Intervention Physical Therapy Sessions at home 62 Aquatic Therapy Sessions at the Children’s Institute 62 Land Based Therapy Sessions at the Children’s Institute For those of you counting, that’s 232 hours spent in physical therapy leading to this…
-
Sharing Life with Sienna
I made this video to show to a group of students studying to become genetic counselors. Genetic counselors typically deliver a prenatal diagnosis. A dear friend and fellow rockin mom and myself presented information to them about how wonderful life…
-
Roadblocks
Today, I hit a small roadblock on my journey of advocacy for Sienna. If I am honest, these moments can set me back. My roadblock came in the form of an adorable little girl who had a perfectly normal question…
