Book Blog
Welcome to This Life We Got
For the past nine years—ever since my daughter Sienna was born—I’ve been writing our story here.
What began as a blog has unfolded more like a book: chapters of family, advocacy, education, and inclusion, written with raw honesty and heart. This space is a peek behind the curtain of our lives, where vulnerability meets persistence, and where I hope you’ll find inspiration for whatever you need today. Readers often tell me it’s the honesty that keeps them coming back. I’m so glad you’re here. Use the search bar to dive into any topic that speaks to you—family, advocacy, education, or inclusion.
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Outrunning Storms
Some storms you can’t outrun. 🌊 Most people manifest success. I manifest hardship. I assume it will find me. Therapy is teaching me the opposite of running: to sit in the in-between, to let the tide rise and fall, to…
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The Heartbreak and Dignity of Risk
It’s hard watching your child struggle, knowing you can’t protect them from every hurt. But that’s the heart of motherhood—trusting that risk, failure, and even heartbreak are what shape our kids into who they’re meant to be. There’s dignity in…
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The Thin Line Between Advocacy and Entitlement in Parenting
Sometimes I wonder: am I asking for fairness in a world that rarely gives it, or am I justifying shortcuts because life is harder? That’s where advocacy and entitlement blur.
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The Real Goal
Today, Sienna and I walked the halls of her outpatient therapy center again.It’s a place that holds nearly a decade of memories—milestones, breakthroughs, battles.It’s seen us warrior through the messiness of progress. So I don’t know why I was surprised…
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This is 45
I have a confession to make. About six months ago, I found myself in an uncomfortable situation—at a gathering where I knew I’d have to share space with someone who had gone out of their way to insult me over…
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Split Wide Open
After years of fighting for my daughter’s inclusion, I find myself split wide open—grieving school closures, Medicaid cuts, and a country that keeps choosing cruelty. This is a story about rage, resilience, and the song that made me pull over…
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When the Crowd Goes Quiet
At one point on this journey, I found myself deep in an advocacy effort alongside a younger mom—newer to the world of disability rights, but fierce, brilliant, and already exhausted by the weight of this fight. We were trying to…
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The GOP’s Big Beautiful Assault on the Disability Community
I stare out the window at the giant TRUMP sign on the hillside of the Pennsylvania Turnpike. Is there no escaping him? I turn to my husband and sigh, “I am going to put my earbuds in and face the…
